- Are there ways that I can reduce my baby’s risk for SIDS?
- Where can I find support if I’ve lost my baby to SIDS?
Sudden Infant Death Syndrome (SIDS)
Having a newborn can be a very exciting (albeit exhausting) time in your life, but it can also be scary to think about the potential dangers for your new baby. Especially if you are a first-time mom, you may have a lot of questions about the “right” way to do things, such as putting your baby down to sleep.
Though it is not often talked about, Sudden Infant Death Syndrome (SIDS) is a real risk and it is good as a new parent to know how to best avoid it. There are many things you can do to reduce your infant’s risk of SIDS.
We hope that you are on this page solely for education and not because of loss. If you are a parent who has recently lost an infant to SIDS, we grieve with you and hope that you have plenty of support in this time of need.
There may not be an exact explanation for what happened, but you may be able to find some peace through therapy, support groups, or other ways of coping. See the end of this page for support organizations and suggestions on how to process your loss.
SIDS, or Sudden Infant Death Syndrome, is the sudden, unexplained death of an infant under 1 year of age. It is also known as “cot/crib death.” The infants affected are typically otherwise healthy, and SIDS is nearly always associated with sleep.
The Centers for Disease Control and Prevention (CDC) places SIDS in a larger category called sudden unexpected infant deaths (SUID), which also includes accidental suffocation and other unexplained deaths. It may be difficult for a death to be classified as one of these three options, and so is often just referred to as SUID.
After the unexplained death of an otherwise healthy infant, an investigation is often begun to determine the cause of death, if possible. Often, an autopsy will be performed to check for any physical factors. The environment in which the infant was in at the time will also be examined to see if anything there could have been the cause.
If the investigation is inconclusive, it is considered true SIDS.
The trouble with SIDS is that the specific cause is often unknown.
Part of the trouble with SIDS is that the specific cause is often unknown. It is most often associated with a breathing issue during sleep, which may be due to physical or environmental factors.
Recently, studies have hypothesized that a defect in a certain part of the brain that deals with awakening from sleep and/or autonomic breathing could play a part in some SIDS deaths. Premature births and low birth weight babies are most at risk for this brain defect, as their brain development may not have been full at birth.
Both physical (body) and environmental factors play a part in making an infant more at risk for SIDS. As far as physical factors, there is the brain defect as mentioned above that can either be due to prematurity or low birth weight or just as a natural defect. This defect has to do with the autonomic nervous system (automatic, unconscious behaviors) that controls a baby waking his or herself from sleep if they stop breathing/are not getting enough oxygen. Additionally, a recent cold or respiratory infection may have affected the infant’s ability to breathe normally.
Environmental factors include a pet or family member rolling on top of the infant (in a co-sleeping environment), anything that could cause an infant’s head, neck, or whole body to become caught, or excess pillows and blankets that could cause suffocation.
SIDS is the most common cause of death for infants under 1 year of age, so it is imperative that parents are aware of the risks associated with the syndrome.
Out of 3,600 reported SUID cases in 2015, about 1,600 were SIDS-specific.
Specific populations are not necessarily more at risk, but there is a higher incidence of SIDS among non-whites (African Americans, Hispanics/Latinos, Asians, etc.) for reasons that are not currently understood.
Male infants tend to have a higher rate of developing SIDS than do females.
Additionally, babies born to mothers under 20 years old also tend to see higher rates of SIDS (this may be due to a lack of education or support about how to care for an infant).
Since SIDS, as the name states, happens without warning, it is more helpful to look at risk factors than symptoms or warning signs.
Risk factors in the infant include:
- Sleeping on the stomach or side (may make breathing more difficult)
- A recent respiratory infection (may still be affecting his or her breathing ability)
- Being born prematurely or with a low birth weight – including multiples births (brain autonomic functions may be less developed)
- Having a smoker in the house/secondhand smoke (may interfere with the baby’s lungs)
- Co-sleeping with a parent or sibling (may be trapped in a tight space, rolled on top of, and/or suffocate in excess pillows and blankets)
- Having a crowded crib (blankets, pillow, and stuffed animals can block a baby’s nose or mouth)
- Overheating (may affect an infant’s breathing)
- Being in the range of 2 to 4 months old (although SIDS may occur up to 12 months of age, it is most common from 2 – 4 months)
- Having a sibling or cousin who was affected by SIDS (may be partially related to a genetic brain defect)
Risk factors in the mother include:
- Using or abusing drugs or alcohol
- Those under age 20
- Those who do not receive enough prenatal care
Are there ways that I can reduce my baby’s risk for SIDS?
Yes, there are! Unfortunately, there is no way to completely eliminate the risk of SIDS, but there are many ways that you can promote safety.
Breastfeeding for 6 months or more reduces the risk of SIDS.
The biggest area that you can help in deals with how your baby sleeps: his/her sleep position, and the environment in which he/she sleeps.
- Always, always, ALWAYS place your baby on his or her back to sleep! And, if someone else (babysitter, family member) is putting your baby down to sleep, make sure to insist that that person always places your infant on his or her back, NEVER the stomach or side.
- Have your baby sleep in the same room as you. This allows you to keep a closer eye on your sleeping baby (monitoring tools just don’t cut it!).
- Do not have your baby sleep with you, your children, or your pets. Co-sleepers have higher rates of SIDS due to the fact that your baby is not ready for an adult bed:
- Fluffier mattresses, blankets, and pillows can suffocate the baby;
- A child, adult, or pet could roll over on top of and suffocate the baby;
- The baby could get stuck in a headboard or between the mattress and a hard surface, causing injury or suffocation.
- Avoid overcrowding the crib/sleep area. Unnecessary blankets, pillows, or stuffed animals can cause suffocation.
- Avoid smoking. Even if you do not smoke in the house, the chemicals attach to your hair, skin, and clothes and can still affect the baby.
- Breastfeed! Breastfeeding for 6 months or more reduces the risk of SIDS.
- Keep your baby warm, but not overheated. If your baby can sleep in sleep clothing without an extra blanket, that is preferred and reduces clutter.
- Take care of any colds or possible respiratory infections right away, since these can affect your baby’s breathing.
At the end of this article, we have included our favorite baby gadgets to help you monitor your baby while he or she sleeps.
Video & audio baby monitors have been easing parent’s minds for decades now, and can definitely be a helpful tool. Though the APA, CDC, and many medical professionals do NOT suggest having a newborn or infant sleep in a separate room during the night, a baby monitor can be extremely helpful during naptimes or when the babysitter is staying with your child.
Moms and dads are busy, and it is crazy to think that one might just sit still next to the crib while the baby takes a nap. No! This is the time you can use to do tasks around the house that you need both hands and more attention to complete. This is a great situation in which to use a baby monitor.
Combine all the techniques above (place the infant on his or her back to sleep, keep clutter out of the area, make sure the infant is not too warm, etc.) along with a video and/or audio baby monitor (and possibly the sleep sock monitor!) during naps, and you boost the safety of your baby!
Where can I find support if I’ve lost my baby to SIDS?
There are many ways to find support and to cope with your recent loss. This doesn’t mean that the transition will be easy, but it may help you and your partner and/or family find some peace in a troubling time.
There are support groups out there for parents who have faced infant loss. Here are some organizations that may be able to help:
- Share Pregnancy & Infant Loss Support: online support as well as local chapters for in-person support
- The Compassionate Friends: online support as well as local chapters for in-person support
- First Candle: grief counseling line (1-800-221-7437) and the option to find local chapters
- Friends of Maddie: an organization that gives grants to families in financial hardship after the loss of a child
- Kelly Ryan Foundation: an organization that provides funds to help with burial costs for families enduring stillbirth or infant loss
- Mommies Enduring Neonatal Death (M.E.N.D.): online support as well as local chapters for in-person support (Christian)
- Resources in specific states:
- California – Helping After Neonatal Death (HAND): support groups for Alameda & Santa Clara counties and Central Valley area
- Texas – Center for Infant & Child Loss (Any Baby Can): grief counseling, funeral assistance, and more
- New York – SICD Resource Center: phone counseling, home visits, and more
- Florida – Florida SIDS Alliance: parent-to-parent contacts, online support, and more
- Resources in other countries:
- United Kingdom (UK) – Sands Stillbirth and Neonatal Death Charity: local support for UK families and online support (call 0808 164 3332)
- Australia – Sands Miscarriage, Stillbirth, and Newborn Death Support: local support for Australian families and online support (call 1300 072 637)
We encourage you to find a local therapist that can help you process through your grief and find ways to go about your life again. If you have a partner/spouse and/or children, you might look into family counseling as well. This can help keep communication flowing through your relationships when many people act withdrawn in a time of loss.
There are some other helpful ways to process a loss of a child, such as:
- holding a funeral
- having a memorial service
- writing letters to your baby
- setting up a small memorial area in your home
- spending an afternoon or evening with friends and family recalling good and funny memories about your child
- Making a scrapbook of any keepsakes and photographs you and your family/friends have collected
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